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Research Volunteer: Exploring the Role of Family Involvement in Supporting the Mental Wellbeing of Minority Ethnic Older Adults in Long-Term Care in the UK: A Social care Perspective
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Title of Study: “Exploring the Role of Family Involvement in Supporting the Mental Wellbeing of Minority Ethnic Older Adults in Long-Term Care in the UK: A Social care Perspective”
We are inviting you to take part in a research study. Before you decide, it is important that you know why we are doing the study and what is involved. Please read the following information carefully.
WARNING:
This study will be exploring [mental health issues]. Please read the information below carefully before deciding to take part.
WHAT IS THE PURPOSE OF THE STUDY?
The mental health of older adults in minority ethnic communities is being studied in this research for the purpose of earning a master’s degree in Health and Social Care, and interviews are to be conducted with social care professionals who work directly with minority older adults in long-term care in the UK.
It is believed that participants are likely to benefit from the opportunity to express their views and experiences, fostering a sense of recognition and validation. Social care professionals taking part in this research help to promote reflection on existing practices of family involvement in care.
This research seeks to discover the following:
- To examine social care practitioners’ perspectives on the role of family involvement in promoting the mental well-being of minority ethnic older adults.
- To identify cultural, social, and structural factors that influence family involvement in the care of minority ethnic older adults.
- To explore practitioners’ perspectives on how family involvement operates in practice.
AM I ELIGIBLE TO TAKE PART?
You will be eligible to take part if you are:
- Aged 18 years or over.
- Been employed within the last 6 months in a UK long-term care setting, e.g., residential care homes and nursing homes.
- Working in a social care role, such as care assistant, senior carer, nurse, key worker, social worker, activities coordinator.
- Having direct professional experience of supporting two or more older adults from minority ethnic backgrounds.
- Having experience of interacting with, or observing, family involvement in residents’ care or wellbeing.
- Able to provide informed consent.
- Sufficiently fluent in English to participate in an interview.
INCLUSION CRITERIA
You are being invited to take part because you possess the criteria listed above.
DO I HAVE TO TAKE PART?
Participation is completely voluntary. You should only take part if you want to, and choosing not to take part will not disadvantage you in any way. Your job will not be affected if you choose not to take part.
WHAT WILL I BE ASKED TO DO?
As a potential participant – what should I expect to happen if I agree to take part?
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This may include:
- I am required to click on the link to the consent form and register my consent to partake in the research Interview. This is to be done electronically.
- An online interview will be conducted via Teams, involving questions structured to obtain information about the experiences of mental health care of minority ethnic older adults.
- The online interviews should take a maximum of 30 minutes. Our data collection period is for a month after which analysis of collected data should commence.
WILL I BE PAID EXPENSES FOR TAKING PART?
You will not be paid to participate in the study as this is a non-funded research.
WHAT ARE THE POSSIBLE BENEFITS/RISKS OF TAKING PART?
There is little to no risk in this research. Participants may benefit from the opportunity to express their views and experiences, fostering a sense of recognition and validation. Taking part may also promote reflection on existing practices of family involvement in care.
WILL ANYONE KNOW I HAVE TAKEN PART?
The University of Lincoln (UoL) is the sponsor for this study based in the United Kingdom. We will be using information from you to undertake the research and will act as the data controller for this study. This means that we are responsible for looking after your information and using it properly.
The research team will keep your name and contact details confidential and secure. The research team will use this information as needed. Certain individuals from UoL may look at the research records to check the accuracy of the research study. The people who analyse the information will not be able to identify you and will not be able to find out your name or contact details.
Your participation will be confidential unless you reveal that you or someone you know is at serious risk of harm. We will talk about it with you so that we can work out together how best to handle this.
WHERE WILL MY DATA BE STORED?
The data obtained from the study will be stored securely on the university OneDrive in password protected files. Only the researcher/researchers will have access to it. Paper copies will be stored in a secure cabinet/office at the University. The data from this study may be put in an Open Access repository for other researchers to use in future research. If so, responses will be anonymised, and any personal data (e.g. contact details) will be removed.
We will keep identifiable information (e.g. contact details) about you for 3 months after the study has finished. This information may be used in relation to further projects – you will be asked to provide your consent if this is the case.
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WHAT WILL HAPPEN IF I DON’T WANT TO CARRY ON WITH THE STUDY?
You are free to withdraw at any point from this study, without having to give a reason, by contacting the researcher.
If you choose to withdraw from the study, the information you have given us up to this point will be deleted. However, once the anonymised data set has been uploaded into the system, it will not be possible to remove your anonymised data from the analysis.
If you choose to withdraw from this study, kindly notify the researcher within 2 weeks after the interview. We will not retain the information you have given thus far, except when such data has already been included in aggregated analyses at the time of your withdrawal.
WHAT WILL HAPPEN TO THE RESULTS OF THE RESEARCH STUDY?
This research result will be documented as part of the dissertation to be submitted to the University of Lincoln as part of the requirements for earning a Master’s degree in Health and Social Care.
WHO IS ORGANISING AND FUNDING THE RESEARCH?
This research is being organised by Temilade Olowo at the University of Lincoln.
WHO HAS REVIEWED THE STUDY?
All research conducted by the University of Lincoln is looked at by an independent group of people, called a Research Ethics Committee, to protect your rights, dignity and wellbeing. This study has been reviewed and given favourable opinion by a University of Lincoln Research Ethics Committee 22210.
WHAT IF THERE IS A PROBLEM?
If you have a concern or a complaint about any aspect of this study, you should ask to speak to the researchers who will do their best to answer your questions. The researchers' contact details are given at the end of this information sheet. If you remain unhappy and wish to complain formally, you can make a formal complaint through the University complaints procedure or by contacting ethics@lincoln.ac.uk.
INFORMATION COMPLIANCE
The University of Lincoln is the lead organisation and will be the data controller for this study. This means that we are responsible for looking after your information and using it properly.
The university’s Research Participant Privacy Notice (https://ethics.lincoln.ac.uk/research-privacy-notice/) explains how we will be using information from you in order to undertake this study. If you feel that we have let you down in relation to your information rights then please contact the Information Compliance Team by email on compliance@lincoln.ac.uk or by post at Information Compliance, Legal and Compliance Services, Lawress Hall, Riseholme Park, Lincoln, LN2 2LG.
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