SHINE - Spina bifida • Hydrocephalus • Information • Networking • Equality
Support and Development Worker (Adults)
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Hours: 35 hours per week, Monday - Friday (Core hours 9am-5pm with some flexibility for evenings/weekends)
Salary: £29,041 FTE (pro rata for part-time)
Location: Home-based, ideally you will live within an hour commute of London, within Essex, Kent or Sussex
Travel: This role will likely require travel to London and across Southeast England to cover conferences, events and clinics, as well as occasional wider travel.
Closing date: Monday 31st August at 11pm
Interviews: Thursday 10th September - virtual via Teams
Role overview
Shine supports a community of over 15,000 members living with spina bifida and/or hydrocephalus, including 10,000 adults (25+).
You will deliver high-quality support and create opportunities for adults living with spina bifida and/or hydrocephalus and their carers, supporting Shine members to lead healthy, independent, and fulfilling lives by improving condition management and fostering connections within the Shine community. This role will focus on adults (25+), you will be primarily working within the Adult Services Team. However, there will be occasions when you will work across age groups to ensure the best outcomes for our members.
The role is home-based, but you will attend clinics in London and the Southeast as required. There would be occasional travel required across wider areas and nationally, including attendance at events, conferences and meetings at our head office in Peterborough.
Key responsibilities
- Deliver innovative support across your region to improve health, social, and emotional outcomes for members.
- Attend specialist clinics to engage with members and professionals.
- Provide information, advice, and guidance to our adult members and carers, including hard-to-reach communities.
- Support members to access benefits, services, and resources that promote financial stability, health, and independence.
- Refer members to Shine’s Health Team, internal specialists, or external agencies as appropriate.
- Develop age-specific groups and peer support networks to reduce isolation and encourage social interaction.
- Recruit and support Shine volunteers.
- Contribute to regional and national events (face-to-face and virtual) based on member needs and interests.
- Represent Shine at conferences, provide information, raise awareness among professionals, external organisations, and the public through presentations and training.
- Promote Shine membership to individuals with relevant conditions.
- Maintain accurate records using Shine’s CRM (Salesforce database).
- Collaborate with colleagues across services, fundraising, and marketing to identify opportunities for sustainability.
- Maintain an up-to-date directory of contacts and share relevant information internally.
- Undertake administrative tasks and other duties as required.
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Other core requirements of working for Shine
- Ability to travel across designated areas.
- Demonstrate flexibility and willingness to work outside core hours when required.
- Ability to work from home and manage lone working effectively.
- Self-motivated, with strong initiative and ability to work independently and as part of a dispersed team.
- Full Enhanced DBS check, UK Right to Work and satisfactory references required.
Person specification
Essential experience:
- Experience supporting adults living with disabilities or their carers.
- At least two years’ recent experience supporting and advising on one or more of the following: Health and wellbeing, Benefits, Education and learning, Employment, Social skills and reducing isolation, Social care and housing.
- Experience developing and delivering opportunities to support adults with disabilities towards outcomes that improve their day-to-day life.
Essential knowledge, skills and abilities
- Event planning, advocacy, and multi-disciplinary working.
- Ability to develop and deliver professional presentations.
- Excellent verbal and written communication skills.
- Strong IT skills (Word, Excel, PowerPoint) and database experience.
- A non-judgemental approach to working with people.
Desirable qualifications:
- Registered Social Worker/Health Professional, or
- Demonstrable experience of supporting disabled adults.
Desirable knowledge, skills and qualities:
- Ability to work with our members on a 1-2-1 basis and to facilitate and run group activities and events.
- Experience supporting adults living with spina bifida/hydrocephalus.
- Experience working in the third sector (paid or voluntary).
- Understanding of NHS systems and processes.
- Understanding of peer support and its role in enhancing services.
- Awareness of social media as a tool to reduce isolation and increase engagement.
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Benefits
- Competitive salary: review due April 2027
- Regular working hours, and no shift work (some very occasional weekends or evenings)
- 3% pension contribution
- 25 days annual leave plus bank holidays, with additional discretionary leave between Christmas and New Year
- Additional annual leave awarded for ‘long service’
- Opportunity to purchase additional annual leave
- Broadband allowance for home-based roles
- Life insurance after 12 months’ employment
- Access to our Employee Support Programme and Mental Health First Aiders
- Support to learn and develop
How to apply
Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job. If you would like to discuss the role with our Deputy CEO, Gill Valentine, please contact Gill.Valentine@shinecharity.org.uk to arrange a convenient time for a call.
To apply, please submit your CV and supporting statement, which should outline your interest and explain how you meet the role criteria, to recruitment@shinecharity.org.uk Please note applications without a supporting statement will not be accepted
We understand that you may wish to use AI tools to help you with some aspects of your application, but we do expect tailored applications which are personalised to your experiences and not generic applications which are completely AI generated. We encourage candidates to be transparent about AI usage in their applications.
Closing date: Monday 31st August at 11pm
Please note: we reserve the right to interview suitable candidates before the closing date, therefore we encourage applications as soon as possible.
Interviews: Thursday 10th September - virtual via Teams
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