SarcoidosisUK
Chair of the Board of Trustees
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SarcoidosisUK Chair of Trustees
SarcoidosisUK is looking for a new Chair of Trustees to lead our Board and support the next stage of our development. We are seeking someone with ambition and strategic experience to continue the amazing support for those affected by sarcoidosis and drive forward progress to future proof the Charity. This is a significant voluntary role for someone with strong board or senior governance experience who can lead the charity and act as ambassador.
About us
SarcoidosisUK is a small charity with big ambitions! We want to make a difference to the lives of those affected by sarcoidosis in the UK by providing information and support, raising awareness and undertaking research into treatments and a cure. We currently support over 9,000 people online and have strong relationships with both clinicians and patients.
Read more about us on our website https://www.sarcoidosisuk.org
The role
The Chair provides leadership to the Board of Trustees and works closely with the Senior Executive to ensure the charity is well-governed, financially sound, and delivering on its charitable objectives.
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Key responsibilities include:
- Leading the Board and helping set the strategic direction of the charity.
- Maintaining a culture that directly reflects the charity’s values and mission.
- Ensuring the Board fulfils its legal, regulatory and compliance responsibilities.
- Setting the agenda for Board meetings and ensuring robust, inclusive decision-making.
- Acting as a critical friend and line manager to the Senior Executive.
- Ensuring performance, risks and finances are monitored effectively.
- Acting as ambassador for the charity.
About you:
We are looking for someone who:
- Has previous Board-level experience (Chair or senior Trustee experience desirable).
- Demonstrates strong leadership, facilitation, and influencing skills.
- Understands the responsibilities and legal duties of charity trustees.
- Is able to commit the time and energy required for the role.
- Shares a passion for our cause and values.
- Ideally has first hand or close family experience of sarcoidosis.
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Time commitment
This is a voluntary role. The Board meets online early evening 10 times a year for no more than 2 hours each time and meetings are friendly and informal. Trustees have a variety of backgrounds and can contribute time and expertise outside of meetings to supporting the development of the charity. Regular contact with the Senior Executive and 2 staff as part of operational oversight. The office is based in London and we have hybrid working.
Application
If you would like to know more about the charity and this particular opportunity, please contact Sue Wilson, the current Chair of Trustees, at sue@sarcoidosisuk.org who will arrange a time to discuss this role in more detail.
Applications should outline the skills and experience you would bring to the role and tell us why you are personally interested in leading the charity which supports the sarcoidosis community in the UK.
Written applications by email should be sent to Sue Wilson at sue@sarcoidosisuk.org.
Applications close 9am on Monday 14 September 2026.
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