Dravet Syndrome UK
Head of Fundraising
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Are you a fundraising leader looking to join a growing charity which brings hope to families living with a rare neurological condition?
Dravet Syndrome UK is looking for a new Head of Fundraising to help them continue to grow and reach their £1 million income target so they're able to expand their impact and help more patients and families living with Dravet Syndrome.
Salary: £45,000 - £55,000 per annum pro rata
Contract: Permanent, part-time, 24-32 hours per week (0.6 - 0.8 FTE). Flexible across Monday to Friday; some evening and weekend working required around key events, with time off in lieu provided
Location: Home-based, with travel to national meetings and fundraising events (approximately four times per year, plus key events as required)
Benefits: 24 days plus bank holidays (full-time equivalent)
Culture: Flexible, supportive, able to work with autonomy
About the charity
Established in 2009 by a group of parents, Dravet Syndrome UK (DSUK) supports over 2,000 patients, carers and siblings across almost 600 families living with Dravet Syndrome, a rare, lifelong form of epilepsy. They do this through their three-prong approach; supporting families, providing professional education, and funding research.
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This is the perfect time to join as they're coming out of a period of transformational growth, when they are about to refresh their strategy following the successful delivery of their first five-year strategy, and have grown both their team and income significantly.
About the role
The Head of Fundraising will lead on high value asks to help further diversify, strengthen and grow DSUK's income base. This role will be both strategic and hands-on. You'll develop and implement the fundraising strategy, setting realistic targets and delivering on them. You will also represent the charity externally by building relationships with high value funders and developing the case for support.
This is a standalone fundraising role, with support from colleagues across the team. You will line manage the Team Administrator, with the potential to grow the team down the line as the fundraising function develops.
About you
This role will suit a confident relationship-builder and a creative thinker, comfortable working autonomously in a small remote team.
We're looking for someone with:
- A proven track record in high value fundraising, across multiple income streams
- Demonstrable success in building new corporate relationships, including securing multi-year partnerships
- Proven success in cultivating major donors, including securing multi-year gifts.
- Experience of developing and managing a pipeline of trust and foundation funding, including writing high-quality applications and managing funder relationships
Get help with your application
Your very own career expert that helps elevate your application to the next level.
If you're driven by making a difference in the lives of people impacted by a serious and rare neurological condition, please send a copy of your profile or CV to Ellen Drummond at Charity People as the first step.
Deadline: Wednesday 29th July at 9am
Interviews: Online, week commencing 10th August
Charity People is a forward thinking, inclusive organisation that actively and deliberately promotes equity, diversity and inclusion. We know organisations thrive when inclusion is at the forefront. We evidence our commitment by matching charity needs with the skills and experience of candidates irrespective of background e.g. age, disability (including hidden disabilities), gender, gender identity or gender reassignment, marriage and civil partnership, pregnancy and maternity, race, religion or belief, or sexual orientation. We do this because we believe that greater diversity leads to greater results for the charities we work with.
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