Motor Neurone Disease (MND) Association
Programme Lead Integrated Support
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Programme Lead - Integrated Support
(Motor Neurone Disease Association)
About the Role
We are seeking an experienced and motivated leader to join our Service Improvement & Transformation team as Programme Lead - Integrated Support. You will lead the development and delivery of integrated support models for individuals living with Motor Neurone Disease (MND).
As the Programme Lead, you will bring expertise in project governance, stakeholder engagement and service improvement, managing risk, budgets, and performance to turn strategy into delivery. This critical role will involve coordinating interconnected projects, driving cross-system collaboration, and ensuring high-quality, coordinated support for people affected by MND across the UK.
The role sits at the heart of national transformation, requiring you to:
- Drive innovative service design strategies
- Strengthen partnerships across health and care systems
- Ensure consistent, person-centred support wherever individuals live
Key Responsibilities
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Lead the planning and delivery of the Programme Lead - Integrated Support portfolio, coordinating seven interconnected workstreams to ensure alignment, quality, and impact
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Develop and manage programme frameworks, governance, and reporting models, embedding ongoing improvement
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Drive progress across projects, managing risk, dependencies, and stakeholder expectations
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Work closely with senior stakeholders to shape and deliver strategic priorities, ensuring timely, coherent execution
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Oversee timelines, budgets, and measurable outcomes across all activities
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Foster inclusive collaboration with colleagues, volunteers, and affected communities
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Utilise data and insights to track performance, benchmarking, and embed organisational learning
About You
Requirements
- Proven experience as a Programme Lead or in a similar strategic delivery role
- Experience leading multiple complex projects with strong project governance track record
- Formal project management qualification (e.g., PRINCE2, APM, or Agile)
- Demonstrated expertise in service improvement and quality improvement methods
- Strong stakeholder engagement skills, including influence with senior leaders and external partners
- Advanced risk management, planning, and budgetary oversight within fast-paced environments
- Analytical mindset with the ability to translate insights into actionable strategy
Preferences
- Experience in healthcare, charity, or service-led organisations
- Knowledge of integrated service delivery models
- Ability to navigate complex systems (e.g., health and social care partnerships)
- Familiarity with MND support structures or similar chronic care landscapes
Working Environment
- Primarily home-based, with travel requirements across England, Wales, and Northern Ireland
- Membership of a dynamic team supporting national transformation at the MND Association
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What We Offer
Benefits
✔️ Holiday entitlement: 28 days (33 days after 5 years), plus UK Bank Holidays ✔️ UK Healthcare coverage: Including dental, eyecare, health screenings, and therapies ✔️ 24/7 GP access via phone and video consultations ✔️ Confidential Employment Assistance Programme (counselling and life assurance) ✔️ Salary sacrifice schemes: Cycle to Work and Annual Leave Buy/Sell ✔️ Benefit Hub (discounts on daily essentials and utilities) ✔️ Enhanced pension scheme ✔️ Development opportunities, including training and career progression
Organisational Values
- Equality, diversity and inclusivity: Removing barriers for employers, volunteers, and communities affected by MND
- Disability Confident: Guaranteed interviews for disabled applicants meeting role criteria
Why Us?
Every day matters to those living with MND. Your role will directly support:
- People requiring cohesive, tailored care through our integrated models
- Communities affected by progressive illnesses, ensuring expert funding, research, and advocacy
The Motor Neurone Disease Association is rated Great Place to Work, offering critical impact alongside excellent benefits and a committed workforce.
To access the full job description and application details, please review the attached Candidate Pack.
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